About Me

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I'm a glass-half-full type of girl. I was diagnosed with type 1 diabetes, grave's disease and celiac disease in 2010 and life-altering allergies in 2013. I believe having a positive attitude is the only way to live with dis-ease. I also believe that life doesn't have to be PERFECT for it to be WONDERFUL. Dis-ease is expensive, so I live a frugal yet healthy lifestyle. This is just my blog; my day-to-day story.

Tuesday, February 19, 2013

What it feels like to be a glutened (celiac) diabetic, in pictures.

A couple weekends ago, I was glutened by a "gluten free" pizza, from a restaurant here in town that specializes in gluten free pizza and even has a manager with celiac disease. How can that happen? Well, when you order pizza on a busy Friday night, it doesn't matter if the manager has celiac; all that matters is the staff back in the kitchen that is hurried and rushed and making your pizza, that isn't as careful as they should be because they are making 20 pizzas at once and they don't think it will matter to anyone if they don't wash their hands between handling the gluten free and glutened pizza ingredients. It just takes one person in the kitchen, even if everyone else is careful.

These are the little things that celiacs worry about; trying to find a balance between keeping ourselves safe while we try to have a normal life that includes the enjoyment of eating out every once in a while. It's scary eating out because of these occurrences. Eating out is met with nervous anticipation, not the normal excitement that a non-celiac feels.

So here's what went down.

First, I got mild stomach pains, slight discomfort, that intensified rapidly over the course of about an hour or two. By hour two, I was so uncomfortable that I stopped what I was doing and just sat on the couch, sitting in a ball, legs pulled up to my chest.



Throughout the rest of the evening, I got a migraine, severe stomach pain, and had multiple trips to the bathroom keeled over in awful pain. Because of being glutened, I could not absorb insulin properly, and had to use double the amounts I normally would to treat the high blood sugars that resulted from eating pizza, and hoped like heck that I wouldn't over bolus, because my body can't easily absorb carbs to treat a low after being glutened. In short, it can make your diabetes even more unpredictable.

But my baby girl Bella can tell when I'm not well and immediately came to my aide, planting herself right up on my chest and into my face to show her undying support.


(this was me many hours later, still laying down and feeling miserable).

But, I bounced back, like I always do. Life goes on. Can't let these little blips ruin you and take away your sunshine. It can be hard to stay positive sometimes, when you are going through a rough time with your disease(s). Just get through one moment at a time, don't worry about tomorrow just yet. That's how I get through things. One day at a time.




12 comments:

  1. Sheesh - that sounds (and looks) miserable. I'm sorry you had to go through that.

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  2. Dude.. this blows!!! You look so miserable :( rightfully so, I know. I'm well aware of the "being glutened" feeling even though my symptoms differ from yours to a certain degree.
    The thing that sucks the most about this is the psychological damage. You just wanted to eat out for a change! We know how hard it is to trust restaurants even when they say they are GF. So what now? only order a pizza on slow nights? Be hyper-vigilant and naggy to the people there? complain afterwards?

    One event would put enough fear in me that it'd be ages before I attempted that again.

    I'm glad you are a bounce-backer though. :) I know I wouldn't have fared so well.

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    1. Scully, Yep, you are right about the psychological damage. Notice how I mentioned it was a few weeks ago...I haven't eaten out once since then.
      You don't want to live in fear like that, but the truth is that when you go to the trouble to call ahead and talk to a manager (who is celiac), then talk to the manager again in person when you get there to re-confirm the GF precautions taken in the kitchen (separate, disposable pans, separate ovens, separate toppings, etc.), and they assure you they are VERY conscientious about their GF practices- but you still get glutened from the pizza... well, it damages you a bit. Because there wasn't anything further I could have done. I did everything right and STILL got glutened. It made me upset because I began to think 'If I can't trust THEM, who CAN I trust is safe to eat????"

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  3. Wow, sorry you had a lousy pizza experience. Glad you had the pup there to help you through. Great attitude. Thanks for sharing.

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  4. I glad to have found your blog today via the Suite D blog as my daughter is both Type 1 and GF. I would like to follow your blog and prefer to do this through an RSS Reader Feed rather than e-mail, Can you add that to your site? It is nice to follow blogs all in one location via an RSS, hope you can add that and thereby reaching even more followers. Thanks!

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    1. Julie, Thanks so much for the RSS feed suggestion! I have added it to my page (I hope it works ok). If you have any issues, please let me know! Great to meet you!

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  6. So glad I found your blog again! I feel for you, I had a bad experience a couple of weeks ago that left me off work for a day. Sorry to hear that you suffered so badly!

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  7. My elder brother also got diagnosed with celiac(he also has diabetes), he thinks his life is ruined. He thinks he can never have outside food again :(

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    1. Hi Liu! Please assure your brother that life is definitely not over! I know it can feel that way with all of the restrictions, but life does get easier- I promise! Please have him contact me, either on twitter: Celiabetes or on Facebook: Celiabetes, thru my blog, or email me at celiabetes@gmail.com. I'd love to talk to him!!

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  8. Hello, I have type 2 diabetes and am gf. I have not been diagnosed with celiac because the dr said my test came back negative however I know for a fact that I am allergic to wheat extremely. Last year I woke up and absolutely could not breath I was bleeding from my back side had diarrhea all day stomach cramps, nausea, headaches, flu aches, tingling from head to toe the list is too long to type. I landed in the er 9 times and they diagnosed me with bronchitis that went on for 3 months. I never had an asthma attack in my life. However, my diabetes was through the roof and one er dr said too stay off carbs until they can find out what was causing these flare ups. I took her advice and the 3 days later I could breathe and almost all symptoms vanished. So I thought I would eat some toast and bam straight back into a severe asthma attack and blood sugar raised to 300. all other symptoms as well, I felt like I was dying. All that from a piece of toast. The drs are still telling me all kinds of stuff. Thati have recurring asthmatic bronchitis, and fibromyalgea and type 2. They will not listen to the wheat symptoms. Last wel I went to the drs and he told me I was overwight and I just need to tell myself I am fine and I will feel better. I ate at a gluten free bakery today which just upened up. All my symptons have returned today which lead me to your blog and me sharing this awful experience. All this and i dont get much help from drs. I am a lil overweight but not much I weigh 190. so my mom is 300 lbs and does not have any of my issues. Bit I never read any one going straight into asthma attacks with celiac. Does any one experience this as well? My throat literally closes up if I get glutened. Any other time I can breathe I just wish I had some answers and why are my test coming back negative that. make the drs think this is all in my head.

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  9. Sorry, really bad typing I was on a phone. Overlook all the errors.

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